Everytime I read of another child who
has been diagnosed with dipg, or see a picture of another
child who has to rely on steroids for relief from swelling
or hear of one more family who will no longer be able to
tuck their child in at night, touching their cheek, stroking
their hair, giving one more kiss before entrusting each
precious gift to angels for safekeeping during the night - I
hate.
"I hate..." is a phrase we try not to use - it's ugly. I
seem to reserve it for steroids and dipg.
I hate what diffuse intrinsic pontine glioma does to
children, robbing them of so much that is child. Running
thru sprinklers, riding a bike, coloring, saying "I love
you". I hate what it does to families, robbing them of a
precious child. Stealing away a lifetime and changing
countless others.
Liam, Tanea, Luke, CJ and just hours ago, Sadie - they have
left behind them parents, brothers, sisters, family,
friends, a world now less because they are gone, but so much
better for them having been here at all.
In loving memory of our son, JJ
I Could Be Your
ChildHelping Kids
Helping Doctors
Helping Families
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diffuser intinsic pontine glioma
difunda glioma de pontine de intinsic
Zerstreuen Sie intinsic pontine glioma
Verspreid intinsic pontine glioom diffondere il glioma di pontine di intinsic
Verspreid intinsic pontine glioom diffondere il glioma di pontine di intinsic
No matter how you say it - it's still Diffuse Intrinsic Pontine Glioma www.freetranslation.com
You know me. I'm your six year old son or maybe your five year old grand daughter. I'm the four year girl old that lives next door. Perhaps the eight year old boy playing soccer around the corner. Or even one of the seven year olds laughing as they ride their bikes past the house. I'm in the group of children at the water park or with my friends in the playground. You know me. I could be your child.
You may not know it but I have a brain tumor. I didn't ask for it. I did nothing wrong or different to get it. The doctors don't know how or why, it just happened. I've been told that it is inoperable and there is no cure. You may not know it, but you know me...I could be your child.
25 June 2009
If you have found and are reading this site, chances are
that your child has or you have intimate knowledge of a
child that has been newly diagnosed with a brain tumor.
If so, I am truly sorry that you have found us. Further,
chances are you have never met or had any knowledge of
a child with a brain tumor until recently. At least that is
how it was for us. On October 19, 2005, a mass was
discovered in the brain stem of our son JJ. Two days
later, he was diagnosed with a rare and inoperable brain
tumor - a diffuse intrinsic pontine glioma (dipg). We, like
you, went on an internet quest for additional
knowledge. Many sites were discovered and researched,
each providing information and support. It is our intent
to join those who have dedicated themselves to helping
others and finding the cure. We sincerely hope this site
serves as an information portal and becomes someplace
you want to come for emotional support, information,
links and the experiences of children who have been
there.
that your child has or you have intimate knowledge of a
child that has been newly diagnosed with a brain tumor.
If so, I am truly sorry that you have found us. Further,
chances are you have never met or had any knowledge of
a child with a brain tumor until recently. At least that is
how it was for us. On October 19, 2005, a mass was
discovered in the brain stem of our son JJ. Two days
later, he was diagnosed with a rare and inoperable brain
tumor - a diffuse intrinsic pontine glioma (dipg). We, like
you, went on an internet quest for additional
knowledge. Many sites were discovered and researched,
each providing information and support. It is our intent
to join those who have dedicated themselves to helping
others and finding the cure. We sincerely hope this site
serves as an information portal and becomes someplace
you want to come for emotional support, information,
links and the experiences of children who have been
there.
Take my hand.
Read my story
Take my hand?
Did you know
Take my hand!
Help find the cure
Take my hand,
I Could Be Your Child
I Could Be Your
Child has been organized to increase awareness of pediatric brain
tumors (primarily dipg), provide funding for research and to
provide support to children and families diagnosed with a pediatric brain tumor.
I Could Be Your Child is a tax-exempt, 501(c)(3) organization.
provide support to children and families diagnosed with a pediatric brain tumor.
I Could Be Your Child is a tax-exempt, 501(c)(3) organization.